At New York Neurology Associates, we understand the complex neurological complications associated with Hypermobile Ehlers–Danlos Syndrome (hEDS), including chronic headaches, nerve pain, dizziness, and autonomic dysfunction. If you are experiencing neurological symptoms related to hEDS, contact us today to schedule an appointment at one of our New York offices. Our experienced team provides comprehensive evaluations and personalized care plans tailored to your unique needs.
Hypermobile Ehlers–Danlos syndrome (hEDS) can lead to complex neurological symptoms that impact daily function and quality of life. In this article, you’ll learn about the neurological complications associated with hEDS, including craniocervical instability, Chiari malformation, MCAS-related symptoms, and other nerve-related concerns.
If you are experiencing headaches, dizziness, nerve pain, or cognitive changes related to hEDS, a specialized neurological evaluation is essential. Contact New York Neurology Associates today to schedule a comprehensive assessment and receive coordinated, multidisciplinary care tailored to your needs.
Hypermobile Ehlers–Danlos syndrome (hEDS) is a connective tissue disorder that affects the structure and stability of the body’s joints, blood vessels, and skin. It can cause joint hypermobility and musculoskeletal pain. In addition, many patients experience neurological complications related to the effects of connective tissue fragility on the nervous system.
Because connective tissue provides structural support for the brain, spinal cord, and peripheral nerves, its laxity can lead to mechanical instability, nerve compression, and altered circulation. These effects can produce symptoms such as:
Many of these symptoms overlap with other disorders, making expert neurological evaluation essential for accurate diagnosis and targeted treatment.
Craniocervical instability (CCI) occurs when lax ligaments at the junction between the skull and cervical spine allow excessive motion that can compress the brainstem, spinal cord, or cranial nerves.
Common symptoms include:
Some hEDS patients may also develop Chiari malformation, in which a portion of the brain (the cerebellum) extends downward into the spinal canal, further aggravating pressure on surrounding nerves and cerebrospinal fluid flow.
We assist patients in obtaining appropriate imaging to detect this condition and assist by referring them to qualified specialists, including neurosurgeons, when appropriate.
Mast Cell Activation Syndrome (MCAS)—frequently seen alongside hEDS—can influence the nervous system through inflammation and histamine release. Patients may experience:
We collaborate with allergy and immunology specialists to help patients identify triggers, manage inflammation, and stabilize symptoms through individualized care plans.
Patients with hEDS may also experience:
We offer advanced diagnostic testing and collaboration with other specialties to ensure a thorough assessment:
Treatment for neurological complications of hEDS may include:
Our goal is to improve stability, relieve pain, and enhance each patient’s overall quality of life through personalized, evidence-based neurological care.
We encourage patients to explore reputable resources for education and community support:
The neurological complications of hEDS require careful evaluation, advanced imaging, and individualized treatment planning to prevent long-term complications and improve stability. At New York Neurology Associates, our board-certified neurologists provide comprehensive testing and collaborative care when needed.
Contact one of our offices in New York today to schedule an appointment and take the next step toward expert management and improved quality of life.
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